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Asked by Paula

AQW 20291/17-22 Written question to the Minister of Health

To ask the Minister of Health for an update on ensuring that everyone diagnosed with Huntington’s Disease receives the exact same information upon diagnosis.

Asked by Paula Bradshaw MLA on 11 June 2021

  • Answered
  • Written
Tabled
11 June 2021
Answer due by
28 June 2021
Answered
21 June 202110 days after tabling
Department
Department of Health
Priority question
No

Answer

The Health and Social Care Board has commissioned a regional team to support patients with Huntington's Disease. Recruitment to this team is being progressed. The team will work with relevant staff in all Trusts and the Huntingdon’s Disease Association of Northern Ireland to ensure that patients receive appropriate information at key stages, including diagnosis.

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